Dear Mr. William C. Weldon: Please Help

As you learn more about Epidermolysis Bullosa (EB), the next step in changing the world of EB is to understand how research makes a difference. Men and women of all races and ethnic groups can be affected and sometimes, it can be with no warning. When there is no family history, EB can develop as a … Continue reading

Why Donate to Debra?

Debra, the Dystrophic Epidermolysis Bullosa Research Association of America, is the only national non-profit dedicated to funding research and providing services and programs for those with Epidermolysis Bullosa (EB). Their organization is dedicated to finding a cure for EB. Today, there is no cure or treatment for EB, except daily wound care and bandaging. However, genetic research … Continue reading

They Call Them the Butterfly Children

These Epidermolysis Bullosa children have adapted the nickname, the butterfly children, as their skin is just as fragile as a butterfly. Due to their fragile skin, they must be touched with great care. The simple friction or pressure to their skin immediately causes it to become damaged and develop painful blisters. The only solution to … Continue reading

Epidermolysis Bullosa Awareness Week

Photo Source: Debra.org In 1984, Ronald Reagan and the United States Congress passed Proclamation 5283, which designated the week of October 25 to the 31st as the National Epidermolysis Bullosa (EB) Awareness Week. This week was created to promote the need for a cure and to stimulate advocacy for all the families suffering emotionally, financially … Continue reading